About K. Butterfly

At the age of 23 in the year of 2016, I experienced a traumatic event that caused my first major flare which led to a confirmed diagnosis of Systemic as well as Cutaneous Lupus.

When I was diagnosed, I had NEVER heard of Lupus. I had just began the clinical portion of a BSN program & ironically a week following my diagnosis we touched on the subject of autoimmune disorders in my pathophysiology course! 

The first year of my diagnosis was ROUGH! I was in & out the hospital, still dealing with grief, dealt with homelessness & just experienced an overall identity crisis trying to wrap my mind around the fact that overnight I went from a healthy 23 year old to now a person with limitations & disabilities. 

I gained over 100lbs from steroid therapy, completely lost all my hair due to Alopecia & endured several different treatment regimes that just further instilled the fact that life had permanently changed for me.

Needless to say my self confidence & self worth took the hardest blows. In 2020, I came to the conclusion that I was going to dedicate all my energy into building back that confidence that lupus had took away & made several lifestyle changes to get myself back to feeling like beautiful me. 

In 2021, for my 5 year Lupus Anniversary, My 29th Birthday & the kick off of Lupus Awareness month, I began introducing the world to me & my journey. The highs, the lows, the ugly, the unfiltered truth & how I, me, WE can exuded CONFIDENCE amidst any storm. 

This is just a peek into one Butterfly’s Journey, please understand my metamorphosis is only one of the many beautiful stories that need to be told 🫶🏽